Category: Cystic Fibrosis
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Goodbye 2022, Hello 2023!
2022 has been a heck of a year! A year filled with love, excitement, disappointment, mistakes, happiness, sadness. All of the things. As I was making my 2023 Resolutions the other day I got to thinking back on 2022 month-by-month. January – Brooks turned 1! We had hit this first birthday milestone and felt good…
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Broken Kid Mentality
Our pediatrician said it best at Brooks’ 15-month check-up back in April.. “I know, it’s hard to not think the worst. I mean you have this “broken child,” this “sick kid,” and it’s hard to change the mindset with the trauma that you’ve been experienced.” WHOA. I haven’t been stopped in my tracks that fast…
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What is CF?!
CF stands for Cystic Fibrosis. By definition from the Mayo Clinic – Cystic fibrosis (CF) is an inherited disorder that causes severe damage to the lungs, digestive system and other organs in the body. Cystic fibrosis affects the cells that produce mucus, sweat and digestive juices. These secreted fluids are normally thin and slippery. -This…
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But, Why? The Finale
It’s been over a year since D-Day…Diagnosis Day. We’ve come a LONG way since February 1st, 2021. Shortly after D-Day, we started visiting the clinic monthly, like most CF patient have to do, and we started treatment to give the best life possible to Brooks. Little did we know all of the things we would…
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But, Why? Pt. 4
2021 was supposed to be better than 2020, right? We had one heck of a January 2021. We thought we had all of our bad for the year in that one month and we were done for the next 11. Again, the Lord had different plans. One day, while Bryson was in quarantine, and Brooks…
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But, Why? Pt. 3
We were home. We were on top of the world. Nothing could stop us now…except for the occasional new parenting learning curve. Ohhhh, but wait. There’s more! The Tuesday after we brought Brooks home, Bryson tested positive for COVID. EXCUSE ME, WHAT?! Sorry, honey, but you can’t be around our freshly surgeried, NICU superstar, newborn!…
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But, Why? Pt. 2
Picking up on January 5th, 2021. The next days were hard. Mentally, emotionally, physically. All three of us were healing in some sort of way. Tuesday, January 5th, we just sat with Brooks all day. We would leave for lunch or have lunch delivered. Pick it up at the ER front desk, eat in the…
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But, Why?
Part of my voice on this blog is for Cystic Fibrosis (CF) Advocacy. The uncorked side. The side that some people won’t show you; how it makes you feel, how medical trauma shows up randomly, and how you learn to cope. Whether it’s CF you advocate for something else, I hope that these words will…
Uncorked with Bree 